Hi, I've had grovers on and off for four years! Nothing from doc has worked for me. So decided to look at my diet and found out that wheat and glutton can cause skin problems.. I have not had wheat or glutton for 3 weeks and it has completely disappeared.. I also used Camoline lotion. Which is fab for the itching! I'm over the moon as I had it on my chest.. So I recommend to u all to just try a wheat and glutton free diet..i saw a difference in a week.There are so many alternative food to choose from now.. Good luck fellow grovers Gina
You might add a category for Sulfites, which may be a cause. I have had Grovers for 20 years or more. And drank wine and scotch for longer. Two years ago, I stopped drinking all alcohol beverages. I have been free from the itching and pain ever since then.
Ellitcott City, Md
West Hollywood, Ca
Delray Beach, Fl
I have Grover's and was diagnosed in June 2016 after many months of misery. Have been on and off steroid creams, kenalog injection, prednisone(which I just finished a month of yesterday) Am currently taking a small dose of Methotrexate once weekly which I have been on since Dec. 31. I ordered some Emu oil which has helped somewhat. Ice packs help alot when the itching becomes unbearable. My scalp, back and chest are the main problem areas for me. I also use coconut oil but the emu oil seems to help more. Spent LOTS of time in the sun growing up which I am sure is the problem.
I suffered with Grover's Disease for over 1 year. The itch was the worse I have ever experienced and the scratch scars stayed with me through 2 summers.
The lessons were biopsy by a well respected dermatologist and the diagnosis was made . The treatment went from expensive light treatments (did nothing except burn my skin) to every lotion and ointment I could try. Nothing worked. My son, every night would rather up my back with eucerin and zinc oxide, just to scratch all night anyways .
I finally went to a naturalopath that suggested I test for ALL foods. This is not a skin test. It is a test that I bought, did at home and sent out to be tested. After a few weeks the results were back and I met with Marty (naturalopath).
I had allergic responses (extreme) to eggs, yeast and cane sugar. He also had me stop gluten.
In less than 2 weeks there was no rash, no itch...nothing.
Two years later, there is still nothing. I am still careful of my diet but I can have this or that in small amounts now and am OK.
I went back to the dermatologist and told him what I had found that worked and he did not want to hear about it .
I truly think that in the medical profession is no acceptable to have any cure for any issue if it does not involve pharmaceuticals or expensive medical testing .
It makes sense to me as our bodies are made to work and work well unless something we are doing is messing it up. Things such as life style, diet, stress, physical labor, obesity. We need to believe there are answers to medical problems that would be many times best left to common sense. So much more to say but not enough room. Please seek this option out. The test cost $300 out of my pocket. (I had already invested close to $1500 on light therapy) It was well worth it and I feel healthy and my skin has healed.
My very best to you.
PL write and will write back. I would like to help. deborahswasey(at)yahoo(dot)com
Ocean Shores, Nsw Australia
I suffered for 10+ years with Grover's disease and treated it (pretty well) with Kyolic Garlic pills (2 in the am, 2 in the pm - the Candida type). Finally my dermatologist mentioned she thought I might have a "yeast problem". I also had sebhorreic keratosis outbreaks and dandruff. I sent in a stool sample (you can get these kits from a Naturopathic Doctor or a Nutritional Therapy Practitioner) and indeed had a slight overgrowth (in my gut) of yeast. I took 2 weeks of grape seed extract pills (specific to the type of yeast I had) and haven't had an outbreak of Grover's or sebhorreic dermatitis since! And, I went off the Kyolic garlic pills. Seems hard to believe it's a coincidence, as I've been in saunas and have been sweaty many times since then. Highly recommend trying this! Good luck to you all!
Ozark's In Mo
I have had Grover's since I was a teenager, but never knew what it was. I am 56 now. My Dermatologist confirmed it a couple of years ago. She suggested using the cream AmLactin which helped, but it was always there. I noticed when I started having fruit smoothies 5 days a week, my skin improved. A couple of months ago I decided to go on a no wheat diet in hopes of helping with inflammation problems. I have fibromyalgia and osteoarthritis and have a lot of pain and stiffness. Well, my pain and stiffness is 60 percent better and the grovers disease seems to be gone for the first time in my life! Oh, and I lost about 7 pounds and feel better than I have in a long time. If I cheat and eat wheat, I am in pain for a couple of days. It is definitely worth a try!
St George, Utah
Hi, Have posted a couple of things and thought I should introduce myself.
I received my diagnosis of Grovers from biopsy, on 4/28/15, yesterday.
What, rare skin disease! I still processing. But, it is my humble opinion that this can be cured and is only a symptom. The cause will show the cure.
I am already eating an amazingly clean diet and have elinimated food like products from my diet. I was doing this to just get healthy after a 10 year stint of first getting my disability and hip replacement then taking care of my Mom. If I only knew know what I knew then. But that is another story.
I started my quest because Mom wasn't getting better, and didn't the answers came to late for me to fix her mental collapse. But I have learned a ton and will be sharing.
Today I'm talking to a Chiroproator/Acupuncturists/Naturalpath and we are going to work out what's going on as soon as we fix the cervical spine. Not sure it isn't the problem completely. You clog of the flow of the bodily systems and stuff is going to go sideways. My neck has been bad for decades due to an injury and it's time to fix it and I believe my neck and this rare disease are connected along with my other issues. I had a cascade effect with my health lately all traced back to moving a piano a few feet. It's on rollers! Stupid, I know, but I learned from this idiocy, big time.
I'll keep you posted and let you know how my journey for a cure goes and where it takes me.
Virginia Beach, Va
I have been a firefighter for 14 years and have had Grover's ever since. I have tried everything for Grover's Disease. To keep it at bay eat healthy natural foods, avoid excessive heat and stress, cut back on alcohol and caffeine. The underlying problem is within the skin, so foods and supplements good for your skin help fight Grover's. Consider a good hair, skin, and nail vitamin. If you have a flair up use a good mild cleansing soap. If the itch is really bad use ice packs, also rubbing alcohol kills the itch and cleans the area. Again, maintaining a healthy lifestyle works best. Sincerely, Chris
I've had a Grover's Disease on and off for 3 years - it was always really mild and went away after a week or two. I've had a horrible outbreak since October 2017 - Its been 5+ months of the most horrible itching from my feet to my neck. I can't sleep and I have bruises all over my body from itching. My dermatologist put me on topical steroids combined with Sarna, both did very little to provide relief. I know from reading lots of posts that many of you have had to endure this disease for years and I am so sorry for you.
This weekend I noticed that I got worse after drinking red wine; I started searching to see if anyone else had the same problem and I found this site. I can't tell you how happy I am that it validated my findings! Wine and anything else with sulfites are now banished from my diet. I also love the advice on eating Cilantro to help/cure the symptoms. Luckily I LOVE Cilantro so I can't wait to go to the store tonight and buy bunches of Cilantro!
I'm very hopeful and I'll report back in a few day on if this remedy works for me or not ......fingers crossed!
Not sure if any are reading these posts now its' Dec 2017. I was diagnosed with Grovers in the late 1990's. I'm a single male in my now late 40's. Seems hard to pin point what the cause is. I didnt have the issue until after going on a cruise to the Bahamas in the 90's not sure if that had anything to do with it., the Sun, intense heat, being fair skinned getting burnt etc.. but regardless went to my family doc, went through the ringer of things including at one point they thought it was Aids... that freaked me out and I'm like How is that possible...? but all test came back negative. and was eventually told I had Grovers. I went to a dermo for years.. never got any long term cure.
for me.. mine seems to pop up the worse in Nov to Dec in the cold months so through winter I have a major issue with it. it seems to always be there, but in the cold months it's much worse and I break out on my upper and lower back and same for chest stomach area. Try being single with this going on and trying to date.. ugh... Rare that I go without a shirt, in the spring an summer my symptoms are not as bad..so I am trying to figure it out.. cold months, heat in the house drying out skin? I was told by the dermo to use lotion after getting out of the shower. pat dry and lotion up.. I have done that for years.
Skip to now.. I can't afford to see a dermo, haven't been since 2008. I don't have health insurance, cant afford it and my job doesn't offer any. So I go to the health dept. they can only do so much but for the past 4 or 5 years. I have been prescribed and using a topical cream (Trimcinolone Acetonide cream 0.1%) and also they will do about a 3 month prescription of Doxycycline Mono 100mg twice daily. neither have made the Grovers go away but make life somewhat tolerable.
Unfortunately the Antibiotic (Doxy) if taken for long periods have caused yeast infections which in turn make you have to take something for that and yes men can get yeast infections just like women its just not as common and its not pleasant either. So I don't take the Doxy as prescribed but the health dept cant do anymore then they have other than refer me to a Dermatologist which would be an out of pocket expense.. having to pay for prescriptions out of pocket is bad enough with no insurance. I'm just tired of the condition.
My diet is the same all year long so I can't see why in the cold months if flares up in the worse way. I don't smoke, I don't drink... if I do its just very rare on a special occasion... like New Years or something.. but I dont drink Wine at all... I have made notes on all the posts and may try some of the things you all have tried to see if I can get some more permanent relief.. just to have the rash to be gone and less itching / irritation (i do my best not to scratch) would be a life changer... last person I dated said it looked like I had Chicken Pox... Major Ego Boost.... lol.. Not...
The one thing that helps is knowing I'm not alone and there are more people out there than I thought that was dealing with this. Most seem to not know about nor never heard of Grovers but I suppose if you don't have it you would. Best of luck to you all in your quest for a cure or relief. I have wondered if you can be treated for Chicken Pox would the same medicine used for that work for Grovers??
My Grover's disease is so bad it is unbearable. I am a 55 year old woman and this started a couple of years ago - about at the onset of menopause. The disease was diagnosed by biopsy. I am considering undergoing light therapy treatment. Is there any wholistic treatment for this? I have used steroid creams & Atarax but it just will not go away. I really need help. I am itching like crazy and the rash is all over my chest, stomach and my upper & lower back. I can hardly bear it.
Middle, Tennessee, Usa
Waynesboro, Va, Usa
Middle, Tennessee, Usa
Waynesboro, Va, Usa
New York, Ny
Los Angeles, California
Los Angeles, US
I contracted Grover's Disease 10 years ago when I lay in bed for 3 months following a head-on collision that broke my bones in 27 places. Several months ago I discovered that coating the area with Hibiclens, a strong and inexpensive antibiotic available without a prescription, for a couple minutes when I take my morning shower, almost completely eliminates the pustules, at least by 80%. Aloe vera or coconut oil also help a little. I am currently applying the Hibiclens only every other day, and I have not experimented to see if I stay cleared up if I stop the Hibiclens.
I have found that an ice pack applied to the area where the itching is occurring during a Grover's disease outbreak is extremely effective to bring almost immediate relief.
Hi I'm a 55 year old female, diagnosed with Grover's rash 10 years ago. I have times when it flares up very badly but mostly it's just lurking around mainly on my chest and stomach. I juice every day and recently added large amounts of coriander to my green juices. The rash has just about disappeared. If anyone else would like to try it, it's worth a shot.
Grover's Disease: I am a 78 yr old female diagnosed by biopsy....... been told that my case is severe includes back, legs and both arms. Itching is outrageous...any ideas are greatly appreciated.....even tried kelp paste and very hot showers/..nothing has been effective....derms have sent me to specialist..// at jmh..have been told there is no cure......it will go away......hope to hear from someone.....