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My 12 yr. old daughter was hospitalized in late Nov'16 (23rd Nov). She spent 48d ays in the UCSF hospital fighting for her life. Drs. has diagnosed her with lupus nephritis and ANCA vasculitis. As a result, her kidneys(CKD5) are affected and she went for dialysis until July'17. She was treated with and was treated with steroids, Rituximab(one dose), Cytoxan (6 doses). With lots of prayers and support, she came off from dialysis and is presently being treated at LPCH(Stanford). She was a perfectly healthy child up to this incidence and has never been sick. Recently her creatinine started going up she is losing her appetite and pain in her legs she is hardly able to walk. It seems her lupus flaring up causing her kidneys affected as well pain in legs and joints.
We are using a natural path where she is on many protocols such as magnesium, Galactose, mannose, Vitamin D, Mineral waters etc. we were hoping with the help of natural path and regular treatment we will be able to save her not to flare up. But it seems not happening. Her blood test results haven't shown any lupus or ANCA yet but we could she because it happened same when she was diagnosed and hospitalized. My husband and I can't sleep and very worried about her. However, very sure that there must be some solution for her kidneys and disease. Looking for ways to revive it and keep her safe from dialysis as much as possible.re
Dr is asking to give her IV steroid that might help her stopping the flare up and in kidneys as well.
Any Help or similar situations anyone have deal and were able to solve will be appreciated.
