Natural Trigeminal Neuralgia Treatment

I disagree with Oscar on the B12 issue. The synergy between BHT and B12 was independently conformed by Ward Dean decades ago. BHT is lipid-soluble, B12 is water-soluble, so they work in different compartments in different ways. But both are classified as antiviral (catabolic, aerobic, acidifying) by Emanuel Revici's metabolic schema.

I had a shingles outbreak in my 40s due to allergic/toxic exposure to urethane adhesive. Trigeminal outbreak, two of three nerve paths, which responded quickly to BHT and B12. At 24 hours, the redness was dramatically reduced. By 48 hours, it was almost natural skin color. BTW, my outbreak was highly atypical in not being in any way painful. No pain, no itching, no neuropathy, only skin lesions. I had natural chicken pox as a child, so this outbreak was likely shingles. It was diagnosed as shingles by visual inspection by MD. And no shingles outbreaks since despite 25-30 years of aging.

Aconitum 9Ch, Arsenicum album 30CH and Hypericum 30CH, 3-5 times a day will help.

I am following this 2015 recipe for Interferon for Trigeminal Neuralgia. Are the three cottage cheese meals with Almond Oil or Walnut Oil the only meals that I should be eating during the day? Are these three interferon meals the only meals you should be eating during this time? Or can you eat other things?

For instance, if I wanted to have celery and peanut butter as a snack will that mess up the outcome?

Please advise.

Thank you,

Loretta

Do you apply into the face or the back of the neck?

Hi Bee, I know this is an old post but I'm wondering if you get this could I correspond with you directly? The Hotmail email you originally posted on this site is no longer valid. Even if you'd rather not have direct contact -and you do get this - I'd love to hear how you are going - hopefully well!

Thank you for sharing the information about vitamin D therapy. It really gives me a lot of hope and I've been doing lots of investigating since reading this.

Cheers JM

Please tell me how often I should drink this and for how long a time period. What do you suggest be done with the radishes afterwards? Any help you can provide is greatly appreciated. Thank you.

Coconut oil by mouth or locally applied?

Hello, which kind of therapist would be good for this problem (Trigeminal Neuralgia)? Thanks.

Hello Pat, we used to communicate on this site. I did get 6 1/2 years of relief from LaserMed, but last year it flared up again, and I have tried everything including the things I posted on this site... I'm on Lyrica now, but I still get flare ups. Just wondering if you did go to LaserMed and how you did with it and how you are doing? I have a home laser that I got through them... I use it, but haven't got the relief this time. Obviously, it is a lower powered laser. I live in the Czech Republic so traveling to the US is impossible now for more reasons than just Covid. Just wondering how you are doing.

I was recently diagnosed with TN. I am freaking out. I had ACDF [Anterior Cervical Discectomy and Fusion, a type of neck surgery] on 26 March 2021 and was trying to recover from that and then 6 weeks after crying with this Awful pain, I get told I have TN and was given Tegretol. I do not like taking meds if I do not have to.

Can someone please tell me about this TN and if u think it was caused by my surgery?

And how can I treat this TN naturally?

Same question: Has anyone heard of tried Rosemary Tea and Ashwagandha Oil to help relieve TN pain?

Hello Lilli Ann, can you tell me how you are doing? I posted 8 years ago, had good look with the protocol I suggested. But now I am suffering from a relapse for 1 1/2 years, tried everything that helped me before. Resorted to meds 9 months ago. But now it is hit with such a violent vengeance that I am totally desperate. Your protocol looks interesting, I'll try anything now, including cutting off my head. But how are you doing now? It's four years later... Thanks for answering me. You could answer me privately if you want...thanks so much. Donna

Hi! I think I have been dealing with occipital neuralgia. I have always been a headachy person but the intensity and frequency of my headaches was become quite a burden. I would call them migraines and they would last for days. And maybe they are migraines. I still don't have an official diagnosis in spite of being more proactive than usual to get medical help and a diagnosis. Anyway, my headaches would begin in my neck and I would have pain at the base of my skull. It radiates to behind my eyes. When severe I begin to have numbness in my face. One day, out of the blue, I had a shock pain in my neck. Well, that got my attention. I know a couple of people with trigeminal neuralgia and that was my first thought. But when I looked it up, I realized that the shock wasn't in the right place for that. But there is a nerve in the neck, where the shock was, and you can have occipital neuralgia. My chiropractor thinks the root problem is arthritis in my neck. I had significant inflammation in my neck when she last adjusted me. I started taking glucosamine at her suggestion a week ago. We shall see if that helps. But I have been doing something else that has been helping a lot and i have had very little pain in the last couple of weeks even though I have been under severe stress. I have an essential oil blend called "Sciatica" from Hopewell oils. It contains peppermint and cistus. I have used it on my lower back with success for occasional sciatica. I put this oil on my neck along my spine and at the base of my skill and anywhere else on my neck that feels painful. I do this at the first sign of pain and repeat every couple of hours. It really seems to help the pain and keep a headache from coming on. Meanwhile, the chiropractor has also given me exercises for my neck. I have also done a couple of youtube stretches designed for occipital nerve pain. If I find anything else that helps, I will report back! ~Mama to Many~

Men- I finally found a way to shave when you have TN. You can go over the shock area very lightly and slowly, both in a moving motion or you can press slowly the electric razor into your check area and the remove it and slowly do the same motion to another area. It takes some time, but it can be done w/o a shock.

I was DX with TN- I would get shocks in the lower 2 branches of C5. That would occur when I ate, brushed my teeth or just talking. It would shock on its own, I couldn't control it. The shocks were strong. Later that progressed into a very intense painful shock on the top of my head, at the root of C5. I went to ER and they proscribed Carbamazapine. That took care of the intense top-of-the-head pain, but did nothing for the branch shocks. They still continued on their own.

So I read more and found that a virus also could contribute to TN. I have an old Bob Beck Zapper from the 90's. It works by placing the contact probes over the Ulna and Radial arteries. I would use the zapper 30 min each nite before bed. W/i 2 days the involuntary shocks stopped. Now all I had were the shocks that I triggered off by touching various spots on my face (R side only) I noticed that the intensity of the shocks decreased from 12/10 to 5/10. I quickly learned where not to touch on my face.

After about a month of nightly zapping, I am now to the point where my shocks are gone, even when toughing my face. It looks like the virus was the main cause of my TN. I continue to zap each nite for 30 min. This is a blood purifier and takes care of all pathogens and viruses in the blood.

HI Zoe,

I am interested in your experience with the Omura protocol, my wife has been suffering with what the doctors call atypical trigeminal neurlagia. She had the microvascular decompression done in 2011, which didnt work. She had chicken pox as an older teenager and I am beginning to wonder if it wasn't activated during a root canal procedure done in 2003. If you wouldn't mind sharing more of the specifics of the omura protocol I would appreciate it. My wife is at her wits end and we have tried many of the ideas mentioned on the website but, nothing has been sustainable. I do believe it could be a virus because she says the pain seems to move to different parts of her face. Once again, thank God for this website and anything you could share with us on the specifics of the omura protocol would much appreciated, we live in a small isolated community in Alaska and it is very expensive to travel out to schedule some of these consultations only to not have them work.

I find that sleeping with affected side up helps. (don't sleep with affected side down on pillow).

Also by chance took viral cold sore defence vitamins and they helped clear up TN (contained astragalus 2g, lysine hydrochloride 800mg, vit C and zinc 45mg)

Look for info and groups on AIP diet, auto immune protocol. Sounds similar to what you are describing

@ Gary (North Carolina)

Are you still doing ok on the thiamine and how much do you take?

Thank you and please stay painfree,

Alice

I am 74 have lots of head pain at times, I use hygrogen proxide 35% food grade from the health store with about 6 eye dropper drops in juice of about 8oz glass 1 to 2 times per day and it cleared my head pain back to normal, it felt like a bad tooth, but dentist says it is not your tooth, it is your sinus. The medical doctor called it tri-geminal - neuralgia. But this has cleared my problem up. Thank the Lord I feel I have found the answer. Baking soda may do the same though. my homopathic doctor taught us that disease cannot live in a high oxygen inverment. That is what is is.

Have you looked into colloidal silver and lysine supplementation?

I believe it was a bad tooth infection which first caused my TN as I had a horrible infection and had to have a tooth pulled and ever since I wasn't the same. If this is a virus like you said what can I do to get rid of it? I'm dying. I want to have a normal life again.

My mother had been suffering the excruciating trigeminal neuralgia (TN) attacks for almost 30 years. She was given painkillers/steroids which help only a temporarily relief of her pain. She had also tried many traditional medications without much success. It was only recently that she was introduced the below natural remedy that we see vast improvement in alleviating her pain.

Ingredients:

2 cups of water
1 average size of White Radish (White Carrot)
Slices of fresh Ginger (optional)

Steps :

1. Wash the white radish, cut into smaller pieces

2. Add 2 cups of water to ceramic pot, close the lid, put to boil

3. Switch off when liquid content reduced from 2 cupful to 1 cup.

4. Drink the liquid between dinner time 7pm to 8pm only

Note : For those elderly who experience discomfort due to radish being a cooling vegie, ginger slices can then be added in step 2.

My mother has seen major improvement after only few attempt, she can now comfortably chew on almond nuts too which she never did for a long time. We like to give thanks and hope by the sharing of this wonderful recipe, many others could benefit from this horrible experiences.

Comment by Dave on 12/26/2014 - I totally agree with you that TN probably has a viral connection similar to Shingles. I wish some research would be done into this. My mother has had TN for 15 yrs and when I had Shingles a year ago, the commonalities were so obvious. It is an area that needs investigation.

What has helped my mother is Complex Vit. B injections weekly. If she misses a week, TN is back with a vengeance. Vit. B is water soluble and it not stored in the body. The other very helpful thing is natural GABA - NOT Gabapentin which is a pharmaceutical version that can be addictive and has other downsides. Be sure to get an unadulterated form of this naturally occurring Amino Acid, which works in the brain to calm down 'spikes' be they physical (as in pain) or mental (as in stress)

I am devastated. When I read your feedbacks and am contemplating the future of my 16 years old I feel so helpless so useless as a mum! Taanya has been suffering so much the last months, and we were like "Oh this must be this, this be that, ". For me giving her Voltaren is a crime, so we were on soft pain killers, Rosemary inhalation etc. Then at one moment I saw the disconnection in her eyes, like she was drowning...alone. I knew then that this was not something we are used to. The ENT specialist was first to mention TN, but at the same time he said, but she is so young. I took her to a Acupuncturist, Chiropractor, 2 dentists. ENT specialist, CT scan, Internal specialist, MRI then a neuro surgeon) finally we have to accept the verdict. She has no tumor Thanks God! But she been diagnosed with TN four days back. She is on Tegretol (2x200mg) and Dexona tablets.

I am frantically looking for alternatives. She is already showing signs of red spots, due to Tegretol. I really do not know how bad is Tegretol, but it is the only working medication now. So we are holding fast to it. In the meantime from what I have seen on this forum, I will enquire for a good acupuncturist on our small island, please do sent her your prayers and good vibes. I wish to God, I could change place with her.

I have found lithium orotate is a powerful brain nutrient. It did what taurine and magtein did but with many other benefits like neurotransmitter balancing. I took 120 mg which is equivalent to 4.6mg of elemental lithium. You experiment with dosage. There is a website called Lithium doctor which has most details on taking lithium. It also allowed me to take methylb12 and methylfolate without anxiety and jitters.

Hello Tom,

In answer to question on how often to use...depends on how long condition has gone on and how severe the outbreak.

Normally, I'd try to use one poultice every other day for a week...then if some success, once a week for a month. If benefiting, I'd do it once a week thereafter for six months. I contend the condition is an infection and infections can go into hiding (virus especially so...read about them online), living in limbo inside our cells. So the continuous use of the CS/DMSO cream poultice must be regular and immediate at any sign of a new outbreak.

Dave, how often are you using the combination of CS and DSMO?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2797593/

Above is a link to pubmed article that lists all the acupuncture points used over 14 almost daily sessions of acupuncture (versus the 2 or 3x/week that is mentioned in the article.) This protocol, along with daily megadoses of sublingual b12 (10K mcg/day methylcobalamine), high quality Omega 3 supplements, high quality curcumin (purchased in the acupuncturists office), and a daily cup of whole fat cottage cheese (sulfur?) with a teaspoon of organic almond oil, and a lot of clean, filtered water (mostly drank water only) cured my trigeminal neuralgia in 2.5 weeks! The pain has not returned at all. I have been pain free now for 4.5 months. I found the Vitamin B12 (methylcobalamine, not the other kind), cottage cheese, Omega3 suggestions on this forum!

I also made sure to not eat any foods that are considered "inflammatory".

Of course, talk with your doctor about this protocol. I would also highly suggest the book by Dr. Terry Wahls, a medical doctor who "cured" her multiple sclerosis with diet. I noticed that I did eat a lot of the things on her list.

Good Luck!

Hello Stan,

To answer your question, I understand not wanting to use DMSO close to eyes; but to get best effect I need a carrier. So I often use DMSO in cream form. I just use about a teaspoon amount mixed with colloidal silver. That way there will be no dripping of DMSO into eyes. I'd not use above eyebrows and keep an inch away from eyes.

Dave, I dont want to apply dmso anywhere near my eye. Is there any other area where I can apply it to ease the pain? Thanks

DMSO is a carrier in thru the skin to the body, so if there is a healer, like colloidal silver it will push it in or an anti inflammatory etc. My mother is on death's door having had over a year of unrelenting agony, she is praying to die and there isn't a thing that is helping her, but I've tried heaps. Things to try: GABA, epilim, tegretol. Keeping the tongue completely still with lips closed and breath through the nose, drop and relax your shoulders, heat packs may or may not help, valerian or a natural relaxative, neck support. And drink only electrolyte drinks. Just a few things to try.

Hello again TN or Cluster Headache sufferers

UPDATE:

When my TN problem first appeared about 4 years ago I was taking Melatonin every night as a sleep aid. The cluster headaches usually would wake me up in the night, but sometimes would appear during the day.

About 2 years ago I ran out of Melatonin and didn't use any for a while and the headaches went away for about a year and a half. I thought the problem was gone but about 2 months ago I found a bottle of Melatonin and started using it again as I suffer from insomnia at times. Soon after I started the Melatonin again the headaches reappeared again and more frequently and stronger than before. I started all my regimens as before when I had the headaches (you can see them on my posts here), with some results but not complete.

Before, I never considered Melatonin as a possible cause but this time when I stopped it the headaches went away after about a week while decreasing in frequency and strength, and now I have been completely free of this curse for 2 months. I can now even sleep on the right side of my face.

I have waited this long to post to make sure the relief is not a coincidence.

I am in no way stating that Melatonin is a bad drug, only that it may not be for everybody.

So, I am suggesting that all of you who suffer with Trigimenal Neuralgia, cluster headaches or migranes and are using Melatonin, to lay off it for a while (at least 2 weeks) and see if that may be or exacerbate the condition.

Hi there I think I have just developed TN. Janet it would be great to know which acupuncturist you saw id whether you think all can treat this nerve? and how you were first formally diagnosed with it. Thanking you. Shona.

Hello again fellow TN sufferers,

Here is another TN "Trigger" in case you have it. If you get chronic blocked up nasal passages and sinus blockage, especially at night while lying down or sleeping you must put a stop to this before it happens. I have found that nasal and sinus blockage evidently puts pressure on a nerve that causes TN. Also I have found (and I am not advertising) a nasal spray that works very well called Nasonex that is a prescription spray especially formulated for nasal and sinus problems. I use it in the morning and at bedtime, and another non-prescription spray during the day (Fred's nasal spray works very well, is not very expensive, lasts for months, and may work without the Nasonex). Whether it helps or not, try not to sleep on the affected side of the face as it will put pressure on the facial nerves...

Trigeminal Neuralgia:

I'm back, still dealing w/ sporadic aching / stabbing, get's easier as time goes on ( 4th. year now ), compared to pain after a Grand Mal Seizure, this is a " walk in the park ", mind over matter ( simply pay it no mind and it won't matter ). Turns out increasing B12 daily dosage from 400mg to 1000mg was the culprit, I had surmised such after surfing various sites pertaining to B12 and in some cases side effects.

After seeing Dermatologist, her referral was that of a " Pain Specialist " ( more appt.'s $$ ) I've been dealing w/ idiopathic left temporal lobe Epilepsy way too long to know what comes after referral and original consultation from one " Specialist " to another, what else but more " follow up's & test's " .

I walked that road over 15 years ago after deciding to try elective brain surgery @ Yale Univ. New Haven, been having countless seizures, both complex partial along w/ grand mal ( " slammers " ) & amnesia, whatever is " done is done " logic alone leads one to believe there's no fixin' this but the Nice Cold Gel Pak sure does suffice at times, especially now as I type.

Only managed to make Phase 3 @ Yale ( 5 interior electrodes ) shortly after Triple ByPass making me no longer an eligible candidate for partial lobotomy, might very well have been to my benefit, can't cry over spilt milk.

Reason for writing today is : DO NOT use excess B12 ( in my case anyway 400 to 1000 ) today after cutting 1000 pill into half, the chronic stabbing burn above eye along w/ forehead and side just above ear is every bit apprx. 90% LESS, leaving a slight easily tolerable one on top towards the rear of skull.

If this helps one persons attempt in pain reduction my time won't be wasted, nor will theirs.

Good Luck ........ careful w/ excess B12, see Primary first or have a blood test to know it's dissolution factor / half life.

Hi again fellow TN sufferers,

Everything I have posted to you I have done and haven't had an attack for 3 weeks. Until Tonight. Being Saturday night, the eve of Super Bowl 51, and after a lot of hard work, I thought I could reward myself a couple of shots of rum. WRONG! Within an hour I had an attack.

I knew this was my so called "period" for attacks and I should have known better.

So I am advising that you give up alcohol forever. I know it's like your best friend but actually it's your worst enemy. I have known this for years but from time to time I revert to the belief that there is something in the bottom of that bottle when there is nothing but heartache.

So if you have an attack and have had a drink in the last hour this could be your "trigger", or one of them....

The EFT is a sure fire winner. Give it a chance. On line its free by Gary Craig. Do not fall for the pay ones. Read as much of the beginning to understand what he is saying, then move on to learning the receipt on a page. I sometimes forget to use it, but as soon as I remember I do it, and sure enough the pain will decrease then maybe have to do it a seconded time. but it always works.

P.S. this remedy also may facilitate the healing of pimples, pustules, and between the toes fungus or any external fungus. For pimples and pustules gently wash the area with water and a little body wash or gentle hand soap, rinse and pat and air dry well. Soak a cloth with urine and press it down on the affected area making sure the affected area is wet. Leave on at least an hour. Apply as often as possible until area is clear. Do not use cologne or perfume on area, and if on face turn your back to the shower when you shampoo and let the used shampoo run down your back when you rinse then scrub back with a back brush. Many pimple problems are caused by hair and scalp oil remaining on the face after shampoo. (I wish I had known that when I was 15 or 16)...

For between the toe fungus soak toes in urine for 1 hour a couple times a day if possible until fungus goes away...

PS to Ear Infection as Possible Cause:

This is one of the best homeopathic home remedies ever:

If you have or suspect an ear infection and can't get antibiotic drops for any reason, take a small cup of fresh warm urine, turn the affected ear sideways or lie down with the affected ear up, fill the ear with urine and pop a cotton ball gently into the ear. Try to keep the ear upright for at least an hour and keep the cotton in overnight if possible, changing the urine daily until infection is cured.

Relief will be felt soon and this really works almost or as well as antibiotics...

And, the remedy is free and you don't have to worry about running out!

Also great for use on blisters and sunburn (application method known)

medical ingredient (contains Uric Acid)

Hi again TN sufferers,

Would like to mention another condition to watch for,

DUST MITES. Make sure your living areas are as clean and free of dust as possible. Dust mite excrement is HIGHLY allergenic. Dust mites are especially prevalent around pillows, bedclothes, couches etc. because dust mites (microscopic insects) eat human skin that is constantly flaking off our bodies. Since pillows, matresses, couches etc. expel air from inside when lain or sat on, dust mites and excrement (gross huh?) are blown right into your nose and mouth to breathe. Since your nose, mouth and ears are the gateway to your brain and nerves, dust mite excrement can cause Urticaria (hives) and other disorders that can cause you serious problems that many people don't realize (i.e. mysterious pain that appears suddenly and then goes away to appear again later such as hives and TN). I carry Prednisone in case of hive attack which can blow up my face and scalp like a balloon. So don't dismiss this as cause of a cluster headache.

One more thing also, when you feel your TN coming on, if you are able, remember what you did, breathed and ate for the last hour before the seizure started and write it down including using and breathing chemicals, being in dusty areas and vacuuming, especially, and what you ate or drank during that hour, or some action that you have performed before that may cause the attack. You may discover something very interesting.

PS ALWAYS wear a dust mask or wet bandana over your nose and mouth when vacuuming as the machine expels exhaust air into the area and still may contain microscopic matter.

So Dear Fellow TN sufferers,

I am going now to insert my antibiotic ear drops (not cream, won't go down where it needs to go that the doctor may not be able to see), flush my nose and use nasal spray and take a Paracetamol. I let TN slip up on me again but doing this I haven't had an attack lately....

Hello all fellow Trigeminal Neuralgia sufferers,

Several years ago I began suffering a condition which I now believe to be Trigeminal Neuralgia of the right side of my face and head. The pain comes on slowly but continuously until the pain is unbearable starting from my right front upper jaw to the right side of my nose and sinus, under my right eye and up to my right temple and right ear. I don't cry but my right eye tears and makes me want to cry more. I had actually contemplated suicide even before I had heard this condition called the "suicide disease". I have had broken noses, fractured eye socket etc. (not disfiguring) and have blamed the condition on those injuries but was never sure and I have been to many MDs, specialists and Maxillo Facial surgeons who told me that those injuries could no possibly cause headaches and never even diagnosed the headaches as Trigeminal Neuralgia!

However, we all know most of that but I have discovered another possible cause for our condition which may or may not give you relief that I am surprised that no one that I know of has suggested.

All my life I have had a problem with middle and inner ear infections. Some have been excruciatingly painful, and will let you know it's there and demands urgent treatment, which I'm sure some of you have experienced.

The facial nerve center is in very close proximity to the ear. It is possible that the patient can experience a low grade infection of the middle or inner ear which may only itch a little and not become highly inflamed and the patient may neglect the condition. But my friends let me tell you that it can tear your nerve center a NEW ONE!

So if you have this condition try antibiotic ear drops (I use Locacorten -Vioform) Which needs a prescription but is not so expensive. Lie down or turn the head sideways and use a small amount only until you feel the ear close up. Dampen a small amount of cotton and squeeze out water and place in ouside of the ear so the oil will not soak into the cotton. Use especially at night and leave in until morning and more during the day as needed if possible.

Also keep ears completely dry in shower, lake and ocean with ear plugs if necessary. Alcohol after swimming or showering WILL NOT WORK!

Hope some of you will find relief, and won't hurt to try...

Prolotherapy & PRP. If your trigeminal neuralgia was caused by an injury or accident this might indeed be exactly what you need. It's a natural healing therapy done most frequently by Physiatrists, natural doctors (NDs) and sportsmedicine MDs. One of the leading practitioners in the world is in Hawaii (Hilo). It's premise is to heal.

Another great solution: Prolotherapy & PRP

John, you may find that spreading the Lyrica out over the course of the day will give you more consistent relief. I was on 75 mg twice a day, and by spreading the same amount to 50 mg three times a day (same total dosage), I now last better at night.

I am also seeing a physiotherapist who is trained in myofascial release. This has also help greatly.

You are so right! B12 aggravated my ATN also.

Seems many things that helps TN can aggravate ATN :(

Dear mages,

Where did your loved one undergo the procedure?

I am thinking about the gamma knife and looking for the right surgeon. Please let me know asap.

Dear Constance, thank you for your email. What a coincidence, I lived in Yakutat in 1973! Also for a little while in 1987... It's a beautiful place when the sun shines! Yes, I do continue on this regime, I don't do the cell salts now as I have no pain, but I faithfully continue to B12, magnesium and coconut oil (not as rigidly as I did when in pain). I have been pain free for 3 3/4 years now so I am thankful. I am so glad to hear this regime is helping you... Please feel free to write me through my email address: donna.j(at)seznam.cz. I would love to hear from you.

Donna

Hi Donna, I Just wanted to say I am from Alaska also and have been suffering from this terrible disease (Trigeminal neuralgia) for the past 12 years. I am grateful for finding the information you provided on this site and am currently taking the regimen you suggested and it is working. I had the microvascular decompression procedure done in 2011 and it didn't work unfortunately. I know these posts are old but, are you still taking the regimen and is it still working for you? Once again thank you for passing the information on it has been a god send.

I hope you tried acupuncture. I am sure you have excellent practitioners in the Philippines.

Thankfully, I have a mild case that seems to go away with Advil, an anti-inflammatory but it could get worse so I want to get ready! I am taking vitamin Bs which are good for the nervous system (nerves in the body). And I am also taking B12 under my tongue which I hope will help, too.

Good luck to you.

Robin in Montreal

Check out cold laser therapy. There is some good research that shows it can definitely help with TN. DMSO is also helpful in relieving TN pain.

Yes I have sharp pain at the temple on the right side also. Hoping and praying to find something to help with the throbbing pain. So anyone know if I can get disability for this? I have applied once and was denied. I find it hard to work on this condition especially as a rural carrier and when the weather changes so does the pain.

Can this be done at any chiropractor? I have tn and suffer from time to time with pain on the right side of my face.

Trigeminal Neuralgia - I had a form of this. Neck pain with electric like shocks up to my head. Sometimes one at a time, sometimes 3. It would stop me in my tracks! This happened each week for the last couple of years.

For a month I have taken 2 tablespoons of COD Liver Oil, and have NOT had ONE nerve pain sense!! I take it every single morning. They have a lemon flavor one on Amazon I take, but the pills should do the same thing. COD Liver Oil does so much good for the body, but the relief I have is amazing. Try it!

I have dealt with TN for about 4 years. This is the regimen that I followed for relief. B-Complex, Magnesium Citrate, Lecithin. Take Daily.

Stop all caffeine and sugar as it aggravates/excites the nerves.

It has been 18 months since the last time it fired and that was a relatively calm period. A year prior to that which caused me to find solutions.

When I fires, I would use Capsaicin cream(high potency strength from Walgreens) on my face. I applied it every four hours and relieve comes over time/use. My face would get red but I don't care. Another critical thing that I did was to use a TENS unit electrical stimulation on my face. I would place the simulators, one on my left temple and one on left cheek by my mouth. This would help dissuade the trigeminal nerve from firing as much.

The final key that I learned was to poke my lower jaw out. This would break the electrical connection and stop the firing of that nerve.

Hope this helps!!!

Being in Israel have you heard of NanoVibronix? If you are still suffering try contacting them about their ultra sound invention. Not cheap but interesting. I have one standing by but acupuncture has helped me in the mean time.

I agree with you regarding the virus theory; hence MMS can also be a excellent option. Do you agree?

Mages, I am so sorry for the loss of your loved one. I just want you to know that you have helped me and probably many others by telling your story. I was already against the medicine and also the surgery. I have heard mostly bad about both of them. It also helped me to know that his pain wasn't so bad in the beginning.

I was diagnosed sometime in the past year. I didn't believe it at first b/c my pain wasn't as bad as people described and also b/c it had come on gradually. I also have a horrible balance problem which has never been corelated with TN. Then I began to believe it when my pain worsened quite a bit and was brought on by drinking cold milk too fast. My pain was also much worse last night when trying to sleep. After sleeping a few hours I awoke to throbbing pain all over my head which felt like my brain had swelled. I am still not sure I don't have a tumor even though the neurologist says I don't after an MRI. I didn't have the contrast dye and wonder if they can tell for sure.

Your post lets me know to vigorously search for the right answer and to not spend time on anything else. I am looking into methyl-b12 and trying to learn all about that possibility of healing.

Again, I am so sorry for your loss and I see that it has only been two months. Thank you.

I lost a loved one who suffered from trigeminal neuralgia disorder for 6 years.

The neurologist prescribed all the medications listed and it did not work. At the beginning stage the pain was bearable but just recently in 2016 the pain was so severe an uncontrollable.

He had not alliterative choice but to seek for a surgery which was his last desire. With fear he did his surgery hoping to come home and go on with his life as a normal guy.

After operation he was in the ICU for 8 days not recovering. in a coma. His hands started turning blue.

He passed on 5/7/2016 not recovering, At times I wonder should he have not gone through surgery.

But he was in so much pain.. He took a gamble in life. I am so devasasted

I read your letter. My thoughts were the same, suicide. It is stated in the bible thy shall not kill thy self. My thoughts were the same, I could not figure out how to keep my soul from burning in hell. Brother/sister, all I can tell you is welcome to hell on earth. Now let's team up and kick the thoughts of suicide, and hells together. I am at 14 months of 24/7hours of pain everything from face, top of head down to c-6 vertabea. This tries to help macaroni salad with spinach & soften the broccoli with steam mix in big bowel eating calms the pains. fruit salads with red grapes watermelon cantaloupe pineapple and salted light.

My husband had TM. Everything we tried didn't work. Only the oil pulling did.

Dear Priscilla, I am very sorry about your husband's pain. Have you read the input on cold laser treatment? I don't know if it is available where you are. Has the homeopath prescribed any remedies?

My husband is suffering from TN and I am really worried about his condition. Doctors have prescribed medication but he gets only temporary relief and is in a lot of pain.

A homeopathy doctor has recommended that he stops have any dairy products which he has.....still no improvement. Am interested in the cell salts that have been mentioned and hope to get check with my pharmacist today.

We are scheduled to see a neuro specialist next week.

LLLT laazer therapy can be replicated in the home with a ten dollar red laser pointer. 5 minutes twice/day on facial nerve ganglia and cervical spine. This works 90% time- no more stabbing pains; also have a chiro check vetebrae for misalignments; add fish oil and black cumin sedd oil. All work.

Hi Lynn

We too live in CO and I was hoping that you could refer what osteopath you went to? My dad is dealing with this now and I'm hoping to find him some options for relief. Thanks!

Hi there, thank you for your comment, my father is visiting the acupuncurist since November 2015 till now and it help him not much. Please what is exactly the Five point acupuncture you mentioned in your comment?

Thank you very much for your answer in advance.

Michaela, Czech Rep.

When I was 17 I was involved in a car crash and suffered head injuries, (fractured scull, broken nose and lots of stitches).

After recovering, a few months later I started getting very bad head pains in one side of my face, teeth, ear, eye, one tonsil, cheek bone and one side of my scull all at the same time although each pain is different..

I think a good description of a couple of the pains is the lights of a pinball machine going round your teeth, and a bolt that they use to kill cows going into your temple..

Mine always came on at night, after being in bed asleep for about two hours. So I always got up alone as my mum, dad and family were in bed. I never told anybody, and just assumed I must have a brain tumor.

It was very hard to get rid of the pain as none of the pain killers touched it, so I used to put thick rubber gloves on (so i could use really hot water) and bath it. Then I had a better idea, I put the gas fire on and sat in front of that with my head close to the bars.

I had this problem for about 7 years before I ever knew what it was. Then one day i was looking through a very old 'pocket doctor' book about 1900s, that my mum had no doubt got from a jumble sale, and there it was, all my symptoms in black and white, i could hardly believe it, even down to one nostril and one eye running.

I had never heard of neuralgia before, but I was glad I had a name for it. I still had neuralgia on and off for the next twenty years, the wind, the rain or just a whisp on my face would cause it, and also stress and worry.

When I was 43 years old i had a particular stressful time, I nursed my father through lung cancer, then found out my niece was taking heroine and crack cocaine all this while running a business on my own. So I got neuralgia every day, i was like a walking zombie!

I had a brain wave and decided to see an acupuncture practitioner, the best decision I ever made. I had five sessions using traditional chinese five point acupuncture. (where your five pulses are taken and read) on each visit.

Then six months ago I bought some DMSO to treat my dog and thought it would also be a good idea to treat myself for a tooth abscess, low and behold it immediately brought back the neuralgia, after being free from it for about fifteen years I was shocked! but this time i knew what to do, I made an appointment with my doctor because these days you can get acupuncture free on the national health, not five point but it still worked for me. No more neuralgia, gone!

I'm really sorry I can't use dmso because it is absolutely brilliant and soon sorted my tooth out, very powerful and works really fast..

So my answer to anyone suffering from neuragia is acupuncture. I was told it is inflammation of the neuralgic nerve.

Best wishes, Janet..

Dear Imran, I am very sorry to hear about your pain. I have no idea what natural medical treatments are available in your country. If you have the possibility of seeing a homeopathic doctor, that would be my best recommendation. It is a difficult condition to treat, but not impossible, I am still painfree after 3 years, so I do feel there is hope. I wish you all the best.

My Dear I am 34 year male. I am involved in Trigeminal Neuralgia disease after a horizontal wisdom tooth extraction. Dear I am very worry to this pain. In my country no proper treatment and I didn't want to do surgery. My pain is on my right side please help me if you have any treatment. Now I am taking pills tegretol and beclofen from last 3 years butt now these tablets are not effective. Kindly help me I'll be thankful to you.

I have also come to realize that I had another problem. I was also UNDER METHYLATED. This will also translate to sleep problems also. This is why I reacted negatively to coenzyme B vitamins, B12 and choline. My body can't process these well. So avoiding B12 and B complex especially folic acid was another piece of the puzzle. People who are over methylated will benefit with these.

The antidote I did take to counteract the effect of the these b vitamins etc was taking the supplement SAMe. SAMe is the best supplement to use as a methyl donor and also quickest to rehab with.

I need to address the methylation cycle in order to get the building blocks to a complete cure.

I find, when an attack is starting, that if I take a brisk walk or even 10 to 15 jumping jacks, or running in place the pain subsides for quite awhile. It comes back again but the physical activity definitely stops attack temporarily. Does this have something to do with blood flow? I wonder.

Just some more detail: I take 1500 mg of taurine in the morning then wait 20 minutes and take 1 magtein capsule. I do the same before going to bed.

I take them 20 minutes apart in case they may compete with each other. I am not entirely sure but I want to be safe and make sure the taurine gets absorbed.

I do not take PharmaGABA or L-Theanine because I think it seems to neutralize the protective effect of the taurine.

I found this quote some where which may validate my logic - "They found that the GABA antagonist abolished the protective effects of taurine, confirming that the taurine protection was due to its activation of GABA receptors."

I cured my Occipital Neuralgia. I used a combination of Antioxidant+NMDA antagonist+Diet. I came across this solution by the way of trying to solve a worsening restless leg syndrome. I came across a website called www.rlcure.com which put together all the pieces of the problem. I had some awareness of the pieces but not how they interconnected. Restless leg syndrome is a sign that your body is aflame with chronic inflammation. I used a bunch of antioxidants to put out the fire. I also used PharmaGABA / L-Theanine and Magtein to enhance brain GABA levels in NMDA. I ate a relatively healthy diet but recognized how certain glutamine foods would make symptoms worse.

The antioxidants I used:

• curcumin BCM-95 (fat soluble)
• grape seed extract (water soluble)
• astaxanthin (fat soluble) (i had always taken this)
• Pterostilbene (water soluble) (resveratol is obsoleted by Pterosrilibene)

I added these later:

• HiTart cherry (water soluble)
• Purple Defense (water soluble)
• blueberry extract (water soluble)

I also use krill oil to potentiate the astaxanthin and the absorption of the fat soluble antioxidants. The fat solubles must be taken with a fatty meal. The water soluble can be taken with or without food. I take them all at same time with biggest meal.

This cured my Occipital Neuralgia and RLS. I used to get a severe headache when I took MSM but not anymore. I thought a while back that the ON was caused primarily by shingles.

Solving these problems enabled me to see that I had something called Atypical Trigeminal Neuralgia (ATN). It is different than plain TN in that pain is chronic as opposed to episodic and never got sudden electroshock pain. My pain is located on right side around maxillary and bottom eye. It blended in with the migraine like pain over eye from occipital so hard to distinguish. I thought the pain may have been due to sinus or dry eye problem but through very exhaustive process of exclusion, I was able to diagnose it as ATN. I had never seen ATN mentioned until relatively recently.

I think Occipital Neuralgia needs to be listed under TN category since they all relate to the head region. I primarily use Taurine and Magtein along with some things I eat to control glutamate overload in order to manage the ATN.

I want to take more B12 methycoblamin but it can aggravate it so must go low dose. Phosphytidylcholine aggravates symptoms so can't take that. Any choline supplement aggravates things it seems. I am still trying to find a complete cure for the ATN. I have some control over the ATN pain.

I've had this pain since 2010, but I was just diagnosed last 2014 because of financial problem. Gamma Knife was already introduced here in Philippines. But it was so expensive. It is more painful to know that I can't afford myself to be cured.

I have had Trigeminal Neuralgia for years, but have experienced extreme, immobilizing pain in the last three years.

I have been living on a low carbohydrate - keto diet in order to keep my blood sugar low, previously not connected (or so I thought) to TN. I'm, now, seeing a connection to high(er) insulin resulting in inflammation and flare ups of TN.

Now, being even more specific, Saturday I ate non gluten grains (not part of my regimen, but a treat), within 10 hours I had an episode, which is still happening today (3 days later). I'm not certain these are connected, however, I'm looking at all the aspects I can affect without drugs/surgery.

It has been researched that high insulin results in inflammation. Has anyone had experience with diet control resulting in TN remission?

If so, what are you doing and what has been your results.

Thank you, Bee

If anyone replies to my address please put reference to PHN otherwise I won't open E-Mail. I am the 2nd. person listed above from top .

I am currently dealing w/ Ulcer and did my usual reading, treatment , diet , exercise etc. that may help , as it turns out I've been here before regarding Vitamin B12 .

My PHN developed 6/2013 and still continues, as it continues I'm noting the pain is less frequent and severe , I've tried most any med along with sleeping w/ a cold compress placed on head . I fashioned a water / ice bag to fit the contour of area placed . I lined it w/ a plastic bag to avoid any leakage , apparently minerals found in water supply ate through the first bag causing me to wake from the H2o Dripping , that doesn't occur w/ lining of bag .

After reading about Ulcer Remedies / Help there was a mention of Vitamin B12 , the Methylcobalamin type , there is another B12 , the Cyancobalamin type , that converts into Methylocbalamin , I first took a pill ( Methy type ) last night 1000mg upon waking this morning , the V5 Upper Branch Trigeminal Nerve Pain was less than the most recent past ( THANK GOD! ) here it is 14 hrs. later the Nerve Pain is still " in check " .

I can only surmise the Cold Compress I put on head nightly lessens most any inflammation of any affected blood vessel close to skin.

John, give this a try, it enables me to sleep through the night. It is an inexpensive Multi Use Ice Bag ( available @ CVS, where I bought mine $12.99 )
I'd suggest " lining it " w/ a plastic produce bag to extend the life and stop any leaking, fill it halfway ( approximately ) then refrigerate.

The Cold Temp will lessen any Blood Vessel inflammation causing contact on Nerve that generates Pain.

I came across this article studying the effects of vitamin B12 and it's effect on Myelin Sheath surrounding damaged nerve and nerve fibers. You name it I've tried it, Lyrica ( nasty side effects ) stopped, Dilantin ( taking it for 41 years Partial Complex Epilepsy therapy ) short half life's recurring sporadic nerve pain, Capzasin, Tricalm , Lidoderm / Lidocaine topical Patches ( poor adhesion ) Calamine, Eucerin skin calming cream, I'm certain I missed others.

Turns out the Vitamin B12 had an obvious effect and that I will know for certain by tomorrow and even more so in 72 hours .

INFLAMMATION causes COMPRESSION / cool compress works for me .
Upper Branch V5 Trigeminal Nerve / Fibers

Are you still pain free? I am looking desperately for some relief for my son who has had atypical TJN for three years. He is depressed and feels there is no end to it.

Hi! Question: What are Kali Phos, Mag Phos, Cal Phos, Fer Phos? Does Phos mean phosphate?

It could be. I have found that sleeping with head elevated keeps flare ups down. The blood vessels in head are blood engorged and increases pressure on nerves, causing them to fire off. Try it

The coconut oil and cell salts are so far reducing flares.

I have the same issue. Can you please explain the facial stimulation and strengthening exercises?

You may want to try a zapper which kills the virus with micro current. Therapeutic doses of olive leaf extract would be very helpful.

Hi Sharon - have you considered Trigger Point Therapy? I am quoting from the self-help book by Clair Davies where he discusses trigger points on the Sternocleiodomastoid muscle (connects breastbone to bony knob behind ears) and referred pain: "...occasional spillover of pain in the side of the face, which mimics trigeminal neuralgia, a disorder characterized by brief attacks of pain caused by irritation of the trigeminal nerve."

Sharon...I have been condensing the condition is virus based for years. If me I would try topical applications of Colloidal Silver with DMSO ...50/50. Every other day for two weeks. If I'm proved I'd continue for two months and begin consuming two tablespoons daily. For a year.

I have had this condition for about 25 years, on and off. The older I get the worse it gets. I used to have longer periods of remission, sometimes as much as a year. The drugs offered have terrible side effects, and the surgery is little more than draconian experimentation. There seems to be no recognizable pattern to this affliction, and believe me, I've been trying to find one for years. I don't subscribe to the theory of leaning blood vessels, simply because of the periods of remission. It makes no sense to believe that blood vessels, somehow, change positions capriciously. I have come to the conclusion this may be a virus, not unlike herpes, that resides in the trigeminal nerve. I have gotten some relief from taking lysine, and I'm still working on the dosage. Lysine is used to fight herpes outbreaks. I've also been able to control the intensity and duration of each single "shot" by using hypnosis. I'm going to get into that practice more deeply, because I believe it's quite promising for controlling my pain. I hope my observations are helpful.

Trigeminal Neuralgia: I too suffer from this horrible complaint. I am on Lyrica 125 mg twice a day to help. My worse time is from midnight until 7am.

HOWEVER!!! I find that if after having early morning shocks every 5 minutes, I go for an hour's walk, I then get maybe 2 strikes after which I am totally pain free, so much so I can play a round of golf! The pain will then return later in the day once I cease to walk /exercise despite medication!! So if you want relief during the day try going for a 20min walk

Try it. You have nothing to lose!! Good Luck

Thanks Lindajb...that does renew my confidence in encouraging people to try laser therapy. Mine did stop after the therapy in M beach...although pricey, as you said. It is worth a try if you can find someone near who has that type of laser. Interestingly mine started too after a dental procedure, and also on the opposite side from the dental work. Strange. But you're right about the stress.

Dear Bessie, It's really hard to say. I did a lot of research after getting my first ray of hope/help from homeopathy. My naturopath prescribed the B12, coconut oil, I read about magnesium, and experimented with the cell salts (because they are related to homeopathy). And then did the laser. But I am in touch with a few people and none have had the results I've had... so it's hard to really know what helped me. I was so confident about all these things because of still being 100% pain free but no one else I am in touch with is. I don't know if they are doing all these things that I did. Everyone's body is different...

As I have written before, I still do the coconut oil, magnesium and B12. I use cell salts occasionally, but not for TN now, but for other things. A lot of it is just research and looking for anything that might help...I don't know how helpful this is to you. Please feel free to email me....I can send you some of the sites I have looked at and some of the things I've researched. I hardly look now as I don't have any symptoms whatsoever. So I really hope that you can find some help for your mother. It is a dreadful condition. Donna

Donna, how did you discovered those things/dosages would be helpful? Was it a boom, article or doctor? My stepmom has TN and the medicine is not working. We're desperate for a solution! Your method is worth a shot. Just wondering how you came to it because everyone's body is different. We want to make sure to try something that will safely help her. Thanks!

Thank You Steve, She will check her D3 levels and also thanks for the information on how much to use.

Has she had Vit D3 levels checked. Lots of people with chronic pain issues are usually low in D3. 10,000 IU/day is a good start. Many hospitals will prescribe 50,000IU of D3 when levels are low. If they are low D3 can helpful on so many levels.